Haemophilia can lead to prolonged bleeding and life-threatening internal complications if not diagnosed early and properly managed. In Ghana, more than 3,000 people could be affected by this genetic bleeding disorder, yet only about 500 cases have been officially recorded. Misconceptions about the disease contribute to stigma and emotional distress among affected families. Many people do not even know the disease exists. Some attribute it to witchcraft or avoid medical care altogether, according to Nana Agyeiwah Awuku.
The University of Ghana Medical Centre (UGMC) has called for a coordinated national response to increase awareness and expand diagnostic services for haemophilia. The theme for World Haemophilia Day 2026 is “Diagnosis: The First Step to Care.” This initiative aims to highlight the importance of proper diagnosis as a precursor to effective treatment.
In Nigeria, the situation mirrors that of Ghana. The prevalence of persons living with haemophilia is estimated at 21,101, but only about 3% have been diagnosed. The Federal Government of Nigeria plans to integrate haemophilia care into maternal and child health services. This move aims to provide better support and resources for affected individuals.
Yet, the challenges remain significant. Many families struggle with the emotional toll of living with an undiagnosed condition. The “Road to Clot Initiative” aims to identify undiagnosed persons living with bleeding disorders in Nigeria. This program seeks to bridge the gap in awareness and diagnosis.
No patient can receive appropriate care without first being correctly diagnosed, noted Professor Muhammad Ali Pate. Collaborative efforts are essential for improving outcomes for those affected by haemophilia. Megan Buckie Adediran emphasized that collaboratively, Nigeria will be a nation where every person with a bleeding disorder can live a full, healthy, and dignified life.
As World Haemophilia Day approaches on April 17, stakeholders in both Ghana and Nigeria are ramping up efforts to raise awareness about this condition. They aim to drive advocacy on haemophilia through education and community outreach.
Details remain unconfirmed regarding future initiatives or specific timelines for implementing these programs. However, health officials express optimism that increased awareness will lead to better diagnostic rates and improved care for those affected by haemophilia.
